I remember my first “come to Jesus” moment when the Ehlers-Danlos diagnosis became real. It wasn't any particularly unique moment. I was walking on my way home from work. I was in a prickly mood, I felt furious and on the verge of tears. I thought about it and realized the the frustration I was experiencing wasn't emotional pain, but physical pain. My right shoulder muscle was pinching together, in an indescribable way for someone without Ehlers. It was pinching a nerve-ending in my shoulder. This was an eye-opening moment for me, I had no control over my pain but I was letting it manifest into my emotions and ruin my day and often times weeks.